There is no single myeloma experience
Myeloma touches the lives of tens of thousands of Canadians. Whether you are living with the disease, caring for someone who is, or are connected another way, your experience and your story are important. We strive to share stories representing the multitude of experiences myeloma can bring.
Filter these stories by topic, or scroll through them chronologically.
Personal stories
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Pharmaceutical partner; Medical Director, Hematology - Myeloma/Myeloid at Janssen Inc.; long-time, strong supporter of Myeloma Canada; helped initiate the creation of the Myeloma Canada Research Network and Database
August, 2020
Richard, when did you first learn about Myeloma Canada? It was the year Myeloma Canada was founded, 2005. Our [Janssen] Community Relations group was working with Aldo [Del Col, late Co-founder of Myeloma Canada] this time and we were part of a cross-fun
Person living with myeloma, strong advocate, support group leader (Ottawa, ON)
July, 2020
It has impacted all aspects of my life. I am a lawyer. Prior to my diagnosisThe process of identifying a disease by its signs and symptoms. I travelled extensively, working with partners in developing countries and countries in transition, supporting justice reform and access to justice initiatives. Although I was p
Person living with myeloma, Support Group Leader, Advocate (Winnipeg, MB)
June, 2020
I was diagnosed with myeloma in 2016 when I was 64 years old. I had feelings of solitude and that I was alone. I reached out to Myeloma Canada in April 2018 and we discussed the need for a support group in Winnipeg. Myeloma Canada has a wonderful guide fo
Person living with myeloma, Strong Advocate, Myeloma Canada Board Member – Montreal, QC
May, 2020
I was diagnosed with multiple myeloma 15 years ago in 2005. I went to the internet for information about the disease and stumbled upon Myeloma Canada. I called and was connected to Aldo Del Col, Co- founder of Myeloma Canada. It only took a few discussion
Person living with myeloma, Support Group Leader, Advocate, and Patient Advisory Council Representative for Québec (Quebec City, QC)
April, 2020
I had a stem cellThe basic unit of any living organism. transplant in 2014 and found Myeloma Canada then. I also had another stem cell transplant in 2018, and again went to Myeloma Canada for information. When I was first diagnosed, I had ordered books from the USA and around the world.
Person living with myeloma, Support Group Leader, Past Patient Advisory Council Chair, Myeloma Canada Board Member (Edmonton, Alberta)
March, 2020
When I was diagnosed with myeloma in 2009, my doctor gave me this wonderful patient handbook that was done by Myeloma Canada.In the handbook, I remember having all the information a person could want. It gave me the opportunity to reach out and connect wi
Hematologist, supporter of Myeloma Canada, member of the Myeloma Canada Scientific Roundtable
February, 2020
I first became involved with Myeloma Canada in a very interesting way! I was attending the American Society of Hematology (ASH) meeting in 2005 and I was getting on a bus, a shuttle, that was taking me to my hotel. A man sat down beside me, looked at my n
Patient, strong advocate, volunteer, and Support Group leader
January, 2020
Spotlight on Quebec Ambassadors: Seeking Access to Innovation
December, 2019
