Personal stories of myeloma

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Collage of people of different ages and races from the myeloma community

There is no single myeloma experience

Myeloma touches the lives of tens of thousands of Canadians. Whether you are living with the disease, caring for someone who is, or connected another way, your experience and your story are important. We strive to share stories representing the multitude of experiences myeloma can bring.

There is no single myeloma experience

Myeloma touches the lives of tens of thousands of Canadians. Whether you are living with the disease, caring for someone who is, or are connected another way, your experience and your story are important. We strive to share stories representing the multitude of experiences myeloma can bring.

Filter these stories by topic, or scroll through them chronologically.

Personal stories

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woman
Spotlight on Jocelyn Kervin

At 46, giving back and staying colourful with myeloma

April, 2022

In the fall of 2017, life was looking pretty good! I was 41 years old, happily single and living it up in Toronto. I was just getting into running, and I had landed a dream job as a Digital Literacy Consultant with the YRDSB after 18 years as a music teac

man and woman
Spotlight on Erin & Jean Guy Belzile

Our journey: A rural perspective

March, 2022

My husband Jean Guy was chief of the Emergency Medical Services in our district of Nipissing, Ontario for 20 years. By profession, I was a registered nurse and spent 35 years working in the ER. When Jean Guy retired in August of 2019 at the age of 62, he

woman
Spotlight on Cyndi Logan

The difficult challenge of weighing my options amidst uncertainties

February, 2022

I was diagnosed with multiple myeloma in 2015 when I was 39 years old. I suffered excruciating back pain for months and the doctors could not figure out why. I thought I had pulled a muscle. I had been doing a lot of running training for a half marathon a

two woman
Spotlight on Maryam Bhatti

Facing myeloma – a child's perspective

January, 2022

When I was only three years old, my mother was diagnosed with multiple myeloma, and although I do not remember much about that time, I know that I was deeply impacted and the concern for her health has been with me for all these years. 

Photo de Glenn Hussey, Président
Spotlight on Glenn Hussey

Spotlight on Glenn Hussey: My myeloma story

December, 2021

In 2006 at the age of 52, my family doctor sent me for what I thought was routine blood work. When he received the results, he referred me to a hematologist at The Ottawa Hospital because of what he saw. I subsequently met with the hematologist, had more b

two people posing
Spotlight on Jojie Misenas

Spotlight on Jojie Misenas: I am my husband’s caregiver

November, 2021

I am my husband’s caregiver! I am his strength, his courage and his hope…It all started with Catalino napping for too long after work, missing workouts and complaining of a nagging pain in his shoulder. This was seven (7) months prior to hearing the dread

woman
Spotlight on Frances DelSol

Spotlight on Frances DelSol: My road now travelled

October, 2021

When I was asked to come into the doctor’s office on August 27, 2020, I knew that the news was not what I expected. As I listened to the oncologist and the word cancer, I began to spiral but the denial was short-lived as I bolted back to reality hearing t

ryan
Spotlight on Ryan Matches

Spotlight on Ryan Matches: Becoming a myeloma advocate

September, 2021

When North Vancouver’s Ryan Matches was met with a myeloma diagnosis in 2015 at the age of 49, he was left with the feeling that “it’s always supposed to happen to someone else”, a sentiment all too familiar that comes with a cancer diagnosis. Digesting t

man
Spotlight on Pierre Laforest

Spotlight on Pierre Laforest: My story

August, 2021

I have twice competed in the Ironman 70.3 World Championship, at Mont-Tremblant in 2014 with my daughter and son-in-law (what a great feeling!), and at Henderson Lake, Nevada in 2013. Before my myeloma diagnosis, I was the Eastern Canada Sales Manager at

woman
Spotlight on Kerrie Gagne

Spotlight on Kerrie Gagne: My AL amyloidosis story

July, 2021

My story began on January 29, 2020, when I went for a cortisone injection in my elbow for an ongoing issue with my right arm that I am still dealing with. I returned to work after that injection and don’t remember much after that because I was taken by am