There is no single myeloma experience
Myeloma touches the lives of tens of thousands of Canadians. Whether you are living with the disease, caring for someone who is, or are connected another way, your experience and your story are important. We strive to share stories representing the multitude of experiences myeloma can bring.
Filter these stories by topic, or scroll through them chronologically.
Personal stories
Results for ``
At 46, giving back and staying colourful with myeloma
April, 2022
In the fall of 2017, life was looking pretty good! I was 41 years old, happily single and living it up in Toronto. I was just getting into running, and I had landed a dream job as a Digital Literacy Consultant with the YRDSB after 18 years as a music teac
Our journey: A rural perspective
March, 2022
My husband Jean Guy was chief of the Emergency Medical Services in our district of Nipissing, Ontario for 20 years. By profession, I was a registered nurse and spent 35 years working in the ER. When Jean Guy retired in August of 2019 at the age of 62, he
The difficult challenge of weighing my options amidst uncertainties
February, 2022
I was diagnosed with multiple myeloma in 2015 when I was 39 years old. I suffered excruciating back pain for months and the doctors could not figure out why. I thought I had pulled a muscle. I had been doing a lot of running training for a half marathon a
Facing myeloma – a child's perspective
January, 2022
When I was only three years old, my mother was diagnosed with multiple myeloma, and although I do not remember much about that time, I know that I was deeply impacted and the concern for her health has been with me for all these years.
Spotlight on Glenn Hussey: My myeloma story
December, 2021
In 2006 at the age of 52, my family doctor sent me for what I thought was routine blood work. When he received the results, he referred me to a hematologistA doctor who specializes in the problems of blood and bone marrow. at The Ottawa Hospital because of what he saw. I subsequently met with the hematologist, had more b
Spotlight on Jojie Misenas: I am my husband’s caregiver
November, 2021
I am my husband’s caregiver! I am his strength, his courage and his hope…It all started with Catalino napping for too long after work, missing workouts and complaining of a nagging pain in his shoulder. This was seven (7) months prior to hearing the dread
Spotlight on Frances DelSol: My road now travelled
October, 2021
When I was asked to come into the doctor’s office on August 27, 2020, I knew that the news was not what I expected. As I listened to the oncologistA doctor who specializes in treating cancer. Some oncologists specialize in a particular type of cancer treatment. and the word cancerA term for diseases in which malignant cells divide without control. Cancer cells can invade nearby tissues and spread through the bloodstream and lymphatic system to other parts of the body., I began to spiral but the denial was short-lived as I bolted back to reality hearing t
Spotlight on Ryan Matches: Becoming a myeloma advocate
September, 2021
When North Vancouver’s Ryan Matches was met with a myeloma diagnosisThe process of identifying a disease by its signs and symptoms. in 2015 at the age of 49, he was left with the feeling that “it’s always supposed to happen to someone else”, a sentiment all too familiar that comes with a cancer diagnosis. Digesting t
Spotlight on Pierre Laforest: My story
August, 2021
I have twice competed in the Ironman 70.3 World Championship, at Mont-Tremblant in 2014 with my daughter and son-in-law (what a great feeling!), and at Henderson Lake, Nevada in 2013. Before my myeloma diagnosis, I was the Eastern Canada Sales Manager at
Spotlight on Kerrie Gagne: My AL amyloidosis story
July, 2021
My story began on January 29, 2020, when I went for a cortisone injectionPushing a medication into the body with the use of a syringe and needle. in my elbow for an ongoing issue with my right arm that I am still dealing with. I returned to work after that injection and don’t remember much after that because I was taken by am