There is no single myeloma experience
Myeloma touches the lives of tens of thousands of Canadians. Whether you are living with the disease, caring for someone who is, or are connected another way, your experience and your story are important. We strive to share stories representing the multitude of experiences myeloma can bring.
Filter these stories by topic, or scroll through them chronologically.
Personal stories
Results for ``
Hematologists, researchers, key contributors, and Myeloma Canada Board Members
December, 2020
Drs McCurdy and Mian, how and when did Myeloma Canada come into your life? Dr McCurdy: I trained in Halifax with Darrell White, who is a well-known myeloma physician and researcher in Canada, and then went to the USA for some additional training. On my re
Researchers and clinicians pivotal in bringing the Myeloma Canada Chair in Multiple Myeloma Research of Université de Montreal at the Maysonneuve-Rosemont Hospital to light and ensuring it remains at the forefront of hemato-oncology.
November, 2020
Drs Roy and Leblanc, how and when did Myeloma Canada come into your lives? Dr Roy: I arrived at Hôpital Maisonneuve-Rosemont in1998 specifically to do transplants and I quickly realized that myeloma patients did not have access to the best treatment optio
Patient, strong advocate, Support Group Leader and fundraiser in the BC South Interior
October, 2020
I came down with myeloma when I was 69 years old and started looking for others in the same circumstances. I wanted to start a support group here in the Okanagan Valley, so with the help of Myeloma Canada we held a support group meeting in Kelowna. That a
Past caregiver, long-standing Multiple Myeloma March leader
September, 2020
My husband Ken was diagnosed with myeloma in March of 2010, and at that time we knew nothing about the disease. He fell through all the cracks in the medical system and unfortunately died shortly thereafter. He was diagnosed on March 31st and two months l
Pharmaceutical partner; Medical Director, Hematology - Myeloma/Myeloid at Janssen Inc.; long-time, strong supporter of Myeloma Canada; helped initiate the creation of the Myeloma Canada Research Network and Database
August, 2020
Richard, when did you first learn about Myeloma Canada? It was the year Myeloma Canada was founded, 2005. Our [Janssen] Community Relations group was working with Aldo [Del Col, late Co-founder of Myeloma Canada] this time and we were part of a cross-fun
Person living with myeloma, strong advocate, support group leader (Ottawa, ON)
July, 2020
It has impacted all aspects of my life. I am a lawyer. Prior to my diagnosisThe process of identifying a disease by its signs and symptoms. I travelled extensively, working with partners in developing countries and countries in transition, supporting justice reform and access to justice initiatives. Although I was p
Person living with myeloma, Support Group Leader, Advocate (Winnipeg, MB)
June, 2020
I was diagnosed with myeloma in 2016 when I was 64 years old. I had feelings of solitude and that I was alone. I reached out to Myeloma Canada in April 2018 and we discussed the need for a support group in Winnipeg. Myeloma Canada has a wonderful guide fo
Person living with myeloma, Strong Advocate, Myeloma Canada Board Member – Montreal, QC
May, 2020
I was diagnosed with multiple myeloma 15 years ago in 2005. I went to the internet for information about the disease and stumbled upon Myeloma Canada. I called and was connected to Aldo Del Col, Co- founder of Myeloma Canada. It only took a few discussion
Person living with myeloma, Support Group Leader, Advocate, and Patient Advisory Council Representative for Québec (Quebec City, QC)
April, 2020
I had a stem cellThe basic unit of any living organism. transplant in 2014 and found Myeloma Canada then. I also had another stem cell transplant in 2018, and again went to Myeloma Canada for information. When I was first diagnosed, I had ordered books from the USA and around the world.