Personal stories of myeloma

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Collage of people of different ages and races from the myeloma community

There is no single myeloma experience

Myeloma touches the lives of tens of thousands of Canadians. Whether you are living with the disease, caring for someone who is, or connected another way, your experience and your story are important. We strive to share stories representing the multitude of experiences myeloma can bring.

There is no single myeloma experience

Myeloma touches the lives of tens of thousands of Canadians. Whether you are living with the disease, caring for someone who is, or are connected another way, your experience and your story are important. We strive to share stories representing the multitude of experiences myeloma can bring.

Filter these stories by topic, or scroll through them chronologically.

Personal stories

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black woman
Spotlight on Paule Désir

A story of hope and faith

July, 2022

My name is Paule Désir. In April of 2021, at the age of 53, I was diagnosed with multiple myeloma. Fifty three years of a life with its share of ups and downs!

woman
Spotlight on Natalie Kononenko

Introducing myself

June, 2022

I was born in a refugee camp in Germany. They were called DP, or displaced persons camps in those days and that is where my parents ended up when they escaped the Soviet Union during the Second World War.

man
Spotlight on Mark Mackenzie

Why I’m giving back

May, 2022

Just over two years ago, in April of 2020, I woke up one morning with a soreness in my left side, in my lower ribcage. I’m a mariner and I was 56 at the time. I like working hard and I like riding my bike, sailing, snowshoeing, and hiking. At my age, bein

woman
Spotlight on Jocelyn Kervin

At 46, giving back and staying colourful with myeloma

April, 2022

In the fall of 2017, life was looking pretty good! I was 41 years old, happily single and living it up in Toronto. I was just getting into running, and I had landed a dream job as a Digital Literacy Consultant with the YRDSB after 18 years as a music teac

man and woman
Spotlight on Erin & Jean Guy Belzile

Our journey: A rural perspective

March, 2022

My husband Jean Guy was chief of the Emergency Medical Services in our district of Nipissing, Ontario for 20 years. By profession, I was a registered nurse and spent 35 years working in the ER. When Jean Guy retired in August of 2019 at the age of 62, he

woman
Spotlight on Cyndi Logan

The difficult challenge of weighing my options amidst uncertainties

February, 2022

I was diagnosed with multiple myeloma in 2015 when I was 39 years old. I suffered excruciating back pain for months and the doctors could not figure out why. I thought I had pulled a muscle. I had been doing a lot of running training for a half marathon a

two woman
Spotlight on Maryam Bhatti

Facing myeloma – a child's perspective

January, 2022

When I was only three years old, my mother was diagnosed with multiple myeloma, and although I do not remember much about that time, I know that I was deeply impacted and the concern for her health has been with me for all these years. 

Photo de Glenn Hussey, Président
Spotlight on Glenn Hussey

Spotlight on Glenn Hussey: My myeloma story

December, 2021

In 2006 at the age of 52, my family doctor sent me for what I thought was routine blood work. When he received the results, he referred me to a hematologist at The Ottawa Hospital because of what he saw. I subsequently met with the hematologist, had more b

two people posing
Spotlight on Jojie Misenas

Spotlight on Jojie Misenas: I am my husband’s caregiver

November, 2021

I am my husband’s caregiver! I am his strength, his courage and his hope…It all started with Catalino napping for too long after work, missing workouts and complaining of a nagging pain in his shoulder. This was seven (7) months prior to hearing the dread

woman
Spotlight on Frances DelSol

Spotlight on Frances DelSol: My road now travelled

October, 2021

When I was asked to come into the doctor’s office on August 27, 2020, I knew that the news was not what I expected. As I listened to the oncologist and the word cancer, I began to spiral but the denial was short-lived as I bolted back to reality hearing t