Personal stories of myeloma

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Collage of people of different ages and races from the myeloma community

There is no single myeloma experience

Myeloma touches the lives of tens of thousands of Canadians. Whether you are living with the disease, caring for someone who is, or connected another way, your experience and your story are important. We strive to share stories representing the multitude of experiences myeloma can bring.

There is no single myeloma experience

Myeloma touches the lives of tens of thousands of Canadians. Whether you are living with the disease, caring for someone who is, or are connected another way, your experience and your story are important. We strive to share stories representing the multitude of experiences myeloma can bring.

Filter these stories by topic, or scroll through them chronologically.

Personal stories

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Spotlight on Kerrie Gagne

Spotlight on Kerrie Gagne: My AL amyloidosis story

July, 2021

My story began on January 29, 2020, when I went for a cortisone injection in my elbow for an ongoing issue with my right arm that I am still dealing with. I returned to work after that injection and don’t remember much after that because I was taken by am

woman
Spotlight on Tanya Zigomanis

Spotlight on Tanya Zigomanis: Living with an Incurable Cancer

June, 2021

At age 37, in May 2019, I was diagnosed with myeloma. Since then, I’ve undergone a stem cell transplant and remain on maintenance. That June, I raised $10,000 for the Princess Margaret Cancer Foundation walk. Then, in September of that same year, I raised

woman
Spotlight on Rinat Avitzur

Spotlight on Rinat Avitzur: My myeloma journey

May, 2021

On a sunny day in September 2019, my phone rang: “Hello Rinat, this is Dr. Gottesman. I am calling to ask you to repeat your blood work. It’s been six months since your last blood work and I am following up since there was a slight abnormality with your h

man
Spotlight on Trevor Ives

Spotlight on Trevor Ives: Staying positive, planning for the future and enjoying the every day.

April, 2021

My myeloma story starts like so many other Canadians: unaware and never having heard of multiple myeloma. At the time I was diagnosed in 2019, I was 53 years old, healthy, and active with the perfect family, great friends, and a good career. Today, with t

woman cyclist holding a 500km sign
Spotlight on Denise Picard-Stencer

Spotlight on Denise Picard-Stencer: 1-year post stem cell transplant and enjoying life to the fullest

March, 2021

My 1st year anniversary post stem cell transplant!I was diagnosed with multiple myeloma, a type of blood cancer in July 2019, 7 months after many investigations and a lot of acute pain. I was closely followed by my hematologist, Dr Arleigh McCurdy and the

woman
Spotlight on Munira Premji

Spotlight on Munira Premji: Choosing hope in my journey with cancer.

February, 2021

For several months, I noticed that I was feeling very tired. My appetite had reduced, and I was losing weight. I was having night sweats and bone pain. I thought this was due to stress at work or menopause. My family doctor ordered blood tests, which indi

woman
Spotlight on Nancy Shamanna

Spotlight on Nancy Shamanna Looking back on how Myeloma Canada helped me in my journey

January, 2021

As a multiple myeloma patient diagnosed in 2009, I have been involved with Myeloma Canada for the last eleven years. I have followed their growth and development with interest in all of that time.

Four people of different ages and races in a circle chatting at the end of a meeting
Spotlight on Bob Smith

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December, 2020

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Spotlight on Arleigh McCurdy & Dr Hira Mian

Hematologists, researchers, key contributors, and Myeloma Canada Board Members

December, 2020

Drs McCurdy and Mian, how and when did Myeloma Canada come into your life? Dr McCurdy: I trained in Halifax with Darrell White, who is a well-known myeloma physician and researcher in Canada, and then went to the USA for some additional training. On my re

two doctors
Spotlight on Richard Leblanc & Jean Roy

Researchers and clinicians pivotal in bringing the Myeloma Canada Chair in Multiple Myeloma Research of Université de Montreal at the Maysonneuve-Rosemont Hospital to light and ensuring it remains at the forefront of hemato-oncology.

November, 2020

Drs Roy and Leblanc, how and when did Myeloma Canada come into your lives? Dr Roy: I arrived at Hôpital Maisonneuve-Rosemont in1998 specifically to do transplants and I quickly realized that myeloma patients did not have access to the best treatment optio

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