There is no single myeloma experience
Myeloma touches the lives of tens of thousands of Canadians. Whether you are living with the disease, caring for someone who is, or are connected another way, your experience and your story are important. We strive to share stories representing the multitude of experiences myeloma can bring.
Filter these stories by topic, or scroll through them chronologically.
Personal stories
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Spotlight on Kerrie Gagne: My AL amyloidosis story
July, 2021
My story began on January 29, 2020, when I went for a cortisone injectionPushing a medication into the body with the use of a syringe and needle. in my elbow for an ongoing issue with my right arm that I am still dealing with. I returned to work after that injection and don’t remember much after that because I was taken by am
Spotlight on Tanya Zigomanis: Living with an Incurable Cancer
June, 2021
At age 37, in May 2019, I was diagnosed with myeloma. Since then, I’ve undergone a stem cellThe basic unit of any living organism. transplant and remain on maintenance. That June, I raised $10,000 for the Princess Margaret CancerA term for diseases in which malignant cells divide without control. Cancer cells can invade nearby tissues and spread through the bloodstream and lymphatic system to other parts of the body. Foundation walk. Then, in September of that same year, I raised
Spotlight on Rinat Avitzur: My myeloma journey
May, 2021
On a sunny day in September 2019, my phone rang: “Hello Rinat, this is Dr. Gottesman. I am calling to ask you to repeat your blood work. It’s been six months since your last blood work and I am following up since there was a slight abnormality with your h
Spotlight on Trevor Ives: Staying positive, planning for the future and enjoying the every day.
April, 2021
My myeloma story starts like so many other Canadians: unaware and never having heard of multiple myeloma. At the time I was diagnosed in 2019, I was 53 years old, healthy, and active with the perfect family, great friends, and a good career. Today, with t
Spotlight on Denise Picard-Stencer: 1-year post stem cell transplant and enjoying life to the fullest
March, 2021
My 1st year anniversary post stem cell transplant!I was diagnosed with multiple myeloma, a type of blood cancer in July 2019, 7 months after many investigations and a lot of acuteA sudden onset of symptoms or disease. pain. I was closely followed by my hematologistA doctor who specializes in the problems of blood and bone marrow., Dr Arleigh McCurdy and the
Spotlight on Munira Premji: Choosing hope in my journey with cancer.
February, 2021
For several months, I noticed that I was feeling very tired. My appetite had reduced, and I was losing weight. I was having night sweats and bone pain. I thought this was due to stress at work or menopause. My family doctor ordered blood tests, which indi
Spotlight on Nancy Shamanna Looking back on how Myeloma Canada helped me in my journey
January, 2021
As a multiple myeloma patient diagnosed in 2009, I have been involved with Myeloma Canada for the last eleven years. I have followed their growth and development with interest in all of that time.
Hematologists, researchers, key contributors, and Myeloma Canada Board Members
December, 2020
Drs McCurdy and Mian, how and when did Myeloma Canada come into your life? Dr McCurdy: I trained in Halifax with Darrell White, who is a well-known myeloma physician and researcher in Canada, and then went to the USA for some additional training. On my re
Researchers and clinicians pivotal in bringing the Myeloma Canada Chair in Multiple Myeloma Research of Université de Montreal at the Maysonneuve-Rosemont Hospital to light and ensuring it remains at the forefront of hemato-oncology.
November, 2020
Drs Roy and Leblanc, how and when did Myeloma Canada come into your lives? Dr Roy: I arrived at Hôpital Maisonneuve-Rosemont in1998 specifically to do transplants and I quickly realized that myeloma patients did not have access to the best treatment optio