October 22, 2025
Helpful resources to share on World Amyloidosis Day
October 26 marks World Amyloidosis Day, a time to raise awareness and share knowledge about a rare and often misunderstood disease. At Myeloma Canada, we’re taking this opportunity to shine a light on AL (amyloid light-chain) amyloidosis, a condition closely related to multiple myeloma. Some people living with Al amyloidosis may also be affected by myeloma, so we’ve gathered a collection of resources to help you better understand this condition.
What is AL amyloidosis?
In AL amyloidosis, amyloid protein fibers build up in tissues and organs throughout the body. These deposits can affect the:
- heart
- kidneys
- liver
- soft tissues
- nervous system
- digestive system
This buildup can interfere with how these organs function, leading to a wide range of symptoms.
How can I learn more?
Check out these trusted, Canadian resources to help you understand AL amyloidosis.
Start with our InfoSheet
Our Amyloid Light Chain (AL) Amyloidosis InfoSheet is a great place to begin. It explains what AL amyloidosis is, its signs and symptoms, how it’s diagnosed and treated, and more.
Watch our InfoVideo
For a short, clear explanation, check out our InfoVideo featuring Dr Christopher Venner. He answers common questions like:
- What is light-chain (AL) amyloidosis?
- How can it affect someone with myeloma?
- What organs can be impacted?
- Can light chains in the kidneys be flushed out?
Need more information? Contact MC Assistance
If you have questions about AL amyloidosis or myeloma, our Myeloma Information Specialists can help you find the information you need. Myeloma Information Specialists are reachable through MC Assistance, our free infoline.
To request information or contact a Myeloma Canada MC Assistance information specialist, simply fill out the request form below OR call 1-888-798-5771.
You’re not alone: Support is here
Join a support group
Most of our support groups across Canada welcome people living with AL amyloidosis. Connecting with others who understand your experience can make a world of difference. Find a support group near you.
Visit MC Lounge
MC Lounge is a private online space for Canadians living with myeloma, and it includes a dedicated AL amyloidosis discussion group. If you’re already a member, you can join the group today. If not, signing up is free and easy.