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See previous issues of Myeloma Matters
Issues are organized in reverse-chronological order. Alternatively, you can choose to view issues from a specific year.
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December 19, 2024
MYELOMA MATTERS: NOVEMBER 2024
- 4th myeloma consensus guideline published!
- Recommendations for the effective use of T-cell–redirecting therapies: a Canadian consensus statement
- Outcomes of young myeloma patients treated with modern therapies
- Decisions on CARVYKTI expanded indication
- 2 NEW InfoSheets: “Managing thrombocytopeniaA low number of platelets in the blood. The normal level is 150,000-250,000. If the platelet count is less than 50,000, bleeding problems could occur. Major bleeding is usually associated with a reduction to less than 10,000. associated with myeloma and its treatment” and “Myeloma Cellular Therapies”
- New myeloma 101 infographic
- Michelle Oana’s promotion to the newly created position of Myeloma Canada’s Chief Mission Officer
- Announcing Myeloma Canada Assistance, or MC Assistance, coming in January!
- Meet Stephanie, Myeloma Canada’s new Myeloma Information Specialist
- Our new website (myeloma.ca) won two awards
- A peek at the PAC!
- Spotlight on Vasilios (Billy) Sotiropoulos
- InfoWebinar: Food for thought for myeloma
- The next Myeloma Canada’s conference for patients and caregivers will be held in Vancouver on February 9, 2025!
- New video: Kyphoplasty and Bone Imaging in Multiple Myeloma
- A fundraiser filled with festive fun!
- Unique partnership at the 2024 Presidents Cup raises $8,500 for Myeloma Canada!
November 22, 2024
MYELOMA MATTERS: NOVEMBER 2024
- Myeloma Canada’s Scientific Roundtable: A unique and collaborative meeting of the most innovative minds in myeloma
- Talquetamab not recommended for reimbursement
- Government of Canada establishes a Committee of Experts to make recommendations on National Pharmacare
- Myeloma patient and caregiver experience survey: XVd – selinexor + bortezomib + dexamethasoneA powerful corticosteroid given alone or with other chemotherapy drugs.
- Health eMatters: Promoting equity, diversity and inclusion (EDI) in clinical trialResearch studies done with patients to evaluate new treatments or new ways of combining and administering existing treatments. By testing new drugs or combinations of drugs, each study is designed to find better ways to treat the disease, as well as improve quality of life and answer scientific and clinical questions. The overall goal of conducting clinical trials is to improve patient care and outcomes. accruals
- Putting a face to myeloma at Sebia User Group meetings
- CancerA term for diseases in which malignant cells divide without control. Cancer cells can invade nearby tissues and spread through the bloodstream and lymphatic system to other parts of the body. Action Now Alliance (CANA) releases survey results on diagnostic and treatment wait times in Quebec
- Increasing myeloma awareness among Quebec healthcare professionals (at CORNQ and GMPQ)
- Giving Tuesday is coming!
- Myeloma Canada’s 18th annual Support Group Leaders’ Summit goes west!
- 8th Annual Sam’s Monte Carlo Casino Night – A tribute to Richard Oana
- A Peek at the PAC!
- Spotlight on Jérôme Goulet
- Living Drugs screening
- Watch presentations from Myeloma Canada’s Edmonton patient and caregiver conference!
- 4 Incredible community fundraisers.
October 24, 2024
MYELOMA MATTERS: OCTOBER 2024
- International Myeloma Society’s annual meeting – some takeaways
- 2 NEW myeloma patient and caregiver experience surveys (Isatuximab + VRd and Selinexor + Vd)
- Making noise this Blood Cancer Awareness Month
- Colorectal Cancer Resource & Action Network’s (CCRAN) virtual symposium on early age onset cancer across tumour types
- Final edition of the 2024 Mini Mag
- Myeloma Awareness InfoTable Day at Lakeridge Health
- NEW InfoSheet: “Managing osteonecrosis of the jaw (ONJ) and other mouth issues associated with myeloma and its treatment.”
- A peek at the PAC
- IMF Support Group Leaders Summit
- Spotlight on Gisèle Fournier
- InfoWebinar: Ongoing Research in Myeloma: Developing Less Invasive Detection Methods Using Blood-Based Cell-Free DNAThe substance of heredity; a large molecule that carries the genetic information that cells need to replicate and to produce proteins. Tests
- Max out for Myeloma: Olympic weightlifter takes on myeloma
September 26, 2024
MYELOMA MATTERS: SEPTEMBER 2024
- Update on myeloma research in September (ASCO and EHA)
- Myeloma Canada at the CDA-AMC Symposium 2024
- 2024 CanNKC Symposium at the University of Ottawa
- We need your voice! Myeloma patient and caregiver experience survey: DVRd
- Be careful if you buy travel insurance as a cancer patient
- The 16th annual Multiple Myeloma March is off to a great start!
- 2nd edition of the 2024 Mini Mag
- Share your creativity! Enter CURE®’s 2025 Calendar Contest
- NEW InfoVideo! “What is Waldenström macroglobulinemia and how is it related, similar, and different from multiple myeloma?”
- Watch “Four important videos for the newly diagnosed”
- A peek at the PAC
- Please join us in welcoming Leigh Kinch-Pedrosa to the Myeloma Canada team!
- Spotlight on Nancy Bies: Living remotely and strength in adversity
- Trois-Rivières (QC) InfoSession
- Highlights from the 2024 Edmonton Myeloma Patient & Caregiver Conference
- Conquering mountains: Myeloma physicians’ trek in the Andes raises $5,310
August 29, 2024
MYELOMA MATTERS: AUGUST 2024
- Best of luck to Dr Durie!
- Letter to the Editor: The best of science and the worst of bureaucracy
- We need your voice! Myeloma & treatment experience survey (Blenrep)
- “Partnering for Equity in Healthcare” by Gilead
- Myeloma Canada at ROCOlloque 2024
- The 16th annual Multiple Myeloma March has officially begun!
- The Mini Mag is back!
- NEW column! A peek at your PAC
- Are you living in Quebec and interested in joining Myeloma Canada’s PAC?
- Attention all golf enthusiasts! Want to volunteer at the President’s Cup in Montreal
- Rappelling to repel myeloma …with David McMullen!
- The MMM Research fund-sharing partnership program is back for its 2nd year!
- New! “Managing anemiaDecreased blood hemoglobin level. Hemoglobin is found in red blood cells and carries oxygen around the body. with myeloma and its treatments” added to “Managing side effects” InfoSheet series
- Find YOUR myeloma community with MC LOUNGE!
- GREAT NEWS! Expanded territories for Chantel Wicks and Karine Gravel!
- Spotlight on Asheley Taker: Taker money and run… My 100+km journey for my mom and stepdad
- 2024 Edmonton Patient & Caregiver Conference
- Trois-Rivières (QC) InfoSession
- Messages #FromHeather: Spreading positivity and awareness at the 2024 Moncton Multiple Myeloma March
- Favouring the memory of a cherished father
- Savage Hot & Wildly Delicious: Spicing up Myeloma Canada!
June 21, 2024
MYELOMA MATTERS: JUNE 2024
- INESSS recommends including Tecvayli
- Martine Elias summarizes Real World Evidence (RWE) session at 2024 Myeloma Patients Europe (MPe) Masterclass
- Myeloma Canada attends Queen’s Cancer Research Institute 2024 Retreat
- A wonderful welcome from Sebia Canada’s User Group
- Insights and learnings on living with myeloma as an Indigenous person
- 2024 Multiple Myeloma March!
- The MMM Research Fund-sharing Partnership Program is back for its
- 2nd year!
- The 3rd annual Myeloma Canada Ride was an astounding success!
- Health eMatters makes an extra IMPACT
- Run for myeloma! Join us at the Marathon Beneva de Montréal
- Spotlight on Kevin Jacobs: Above all, don’t give up
- Melodic victory: Celebrating The Classics’ success!
- Bear Steak Sandwiches raises funds for Myeloma Canada with every bite!