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Learn to Self-Advocate

Our mission is to ensure that your voice is heard and we are committed to improving myeloma patient outcomes. To help us support you and achieve our mission, it’s important for you to help yourself first by becoming your own advocate.

There are two types of advocacy:

  • Personal advocacy

Personal advocacy is when you become better informed about your condition, and take action to receive the best possible care for yourself. As a patient, you have the right to make decisions about your healthcare. You need to fully understand your options, the benefits and the risks. If you have questions, speak up. For instance, if your employee health plan does not cover a certain drug, ask your employer or human resources manager if the company can make an exception in your case. Or ask your employer if they would waive the cap on your drug coverage. Find someone to work with you to advocate for the drug coverage you need, such as a family member, or a friend. And this person can continue to advocate for you even when you cannot.

  • Health System Advocacy

Health system advocacy is when you identify issues within your government health policy that need to be addressed and you take action that can benefit yourself, your loved ones and many others within the province or territory. An important aspect of advocacy is to speak up so that others understand what you need and how they can help.

Also, don’t forget to look for patient support groups in your area. Patient support groups can be valuable sources of information, support, awareness, and advocacy.